A group of grassroots parent advocates in the state – Wisconsin Families Forward – hasn’t given up on stopping a proposed freeze on community long-term care funding for children and adults with disabilities. Wisconsin Families Forward has formed to specifically share the stories of young people with disabilities and their families who now face uncertainty and terrifying choices after the freeze goes into effect June 30.
Please share this survey with your networks, groups of families and parent associations – particularly parents of young children and parents of young adults in transition or waiting for a life in the community.
Also, encourage families to send their personal stories with photo and complete address to this address – Lisa.Pugh@drwi.org. Stories will be shared with legislators. When writing their story, here are questions families should answer:
Knowing your son/daughter as you do now, and thinking of the type of supports he/she may need to live life as a successful adult – as YOU envision – what will it mean if there is NOTHING by way of help?