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Need Your Help! We Are Collecting Stories about Those Waiting for Long Term Care in WI!

The Survival Coalition of Wisconsin Disability Organizations is connecting with consumers, families and disability advocates across the state to collect the stories of people who are waiting for long-term care. As you may already know, with some limited exceptions, there will be virtually no new enrollment in Family Care, Partnership, IRIS, COP or CIP in the next two years.

We want to know how people are getting their needs met while they wait for necessary long term care services. This information is critically important to inform policy makers on how the long term care caps are affecting real people in Wisconsin.

There are several ways you can help us collect this information. Either print out the questionnaire and mail back a hard copy (address is included on the form) with a waiting individual’s contact information or fill out a form electronically at one of the links below.

Please consider forwarding this message to your contacts and groups and posting it on your organization’s website or Facebook page.

Questionnaire links to share:

(You only need to fill out ONE of these questionnaires. Please choose the appropriate option)

If you are an interviewer and would like to assist someone filling out the questionnaire, use this link: Interviewer questionnaire.

If you are consumer who would like to fill out the questionnaire on your own, please use this link: Consumer questionnaire.

To print a hard copy of the survey to fill in and mail back, click here: LTC-Cap Questionnaire.

The most important piece of the questionnaire is accurate contact information so someone can reach the individual if there are additional questions.

Thank you for distributing this information widely!