Reprinted courtesy of the Dodge County Pionier:
PUGH NAMED TO PRESIDENT’S COMMITTEE
Daughter’s rare disability sparks passion and vision
by Gayle Rydstrom
Shortly after Erika Pugh was born 14 years ago, she was diagnosed with a rare disability called Rubinstein-Taybi Syndrome (RTS).
According to the RTS website, the disability ‘refers to a specific pattern of physical features and developmental disabilities which occur together in a consistent fashion. Individuals with Rubinstein-Taybi syndrome have short stature, developmental delay, similar facial features, and broad thumbs and first toes.’
“[Erika’s] early years were tough on our family,” said Horicon native Lisa Pugh, Erika’s mother. “She was fed through a tube for the first three years of her life and had many therapies and doctor appointments.”
Lisa discovered her strong views regarding inclusion for people with disabilities and her passion for advocating on behalf of other families because of Erika’s disability. Erika does not speak and has a significant disability, but she is the core of the Pugh family.
“My husband [Michael, a Mayville native] and I have a vision for including Erika in everything we do and to support her to live as independent and fulfilling life as possible,” said Lisa. “We strongly believe every person with a disability has something to contribute to our communities and they should not be segregated in our schools, our workplaces or our places of worship.”
On May 9, Lisa was appointed to the President’s Committee for People with Intellectual Disabilities. It is a two-year term. Although Lisa will visit Washington at least twice each year, she and her family will continue to live in Madison. Click here to read the rest of DRW Public Policy Director Lisa Pugh’s Hometown Newspaper Celebrates her Appointment to Presidential Committee »